CHD is weird.

“You wanna know something, Mom? Everything that is weird today is Theodore magic!”

-๐— ๐—ฎ๐—ฐ๐—ž๐—ฒ๐—ป๐—ป๐—ฎย ๐—ก๐—ฒ๐—น๐˜€๐—ผ๐—ปย ๐—ผ๐—ปย ๐Ÿด/๐Ÿฏ๐Ÿฌ/๐Ÿฎ๐Ÿฏย 

(๐—ง๐—ต๐—ฒ๐—ผ๐—ฑ๐—ผ๐—ฟ๐—ฒโ€™๐˜€ย ๐Ÿฐ๐˜๐—ตย ๐—•๐—ถ๐—ฟ๐˜๐—ต๐—ฑ๐—ฎ๐˜†)

My little 8-year-old was certainly on to something, as we were walking the beach back in August; she made a very basic point that carries a whole lot of punch.ย ย โ€˜๐˜ž๐˜ฆ๐˜ช๐˜ณ๐˜ฅโ€™โ€ฆ Itโ€™s such an innocent way to put it.ย โค๏ธ

CHD is weird. You watched your adorable baby brother enter, and then exit this world all before turning fiveโ€ฆ

CHD is weird. You saw tubes, wires, bandages, and pumps connected to every square inch of his body, and still called him โ€œsooo cuteโ€ in your tiny squeaky voiceโ€ฆ

CHD is weird. You wanted to help feed your brother, and thought it was โ€œsillyโ€ that he could only eat through a tube in his nose…ย 

CHD is weird. You helped set-up his blue bedroom upstairs, only to watch us take it apart when he never came home… 

CHD is weird. You pick out a sweet treat every August and sing โ€˜Happy Birthdayโ€™ to Heaven, while discussing how tall your brother may have been this yearโ€ฆ 

CHD is weird. You like to look for those โ€˜magical momentsโ€™, such as spotting a red cardinal, unexpectedly meeting new โ€˜heart familiesโ€™, and finding extra ways of โ€˜doing goodโ€™ in honor of our Warrior….ย 

I agree, MacKenna, CHD is weirdโ€ฆ 

One minute youโ€™re holding your child in your arms, and then โ€˜POOFโ€™, like magic, they disappear. CHD is weirdโ€ฆ so weird, that it magically changes your entire world. Life itself becomes an illusion created by your own perception; desperate for purpose, and heavily dependent on good perspective. 

โค๏ธAlexandria

… join me by #FallingRightSideUpย โ˜๐Ÿผ

when life gets turned upside down๐Ÿ‘‡๐Ÿผ

One thought on “CHD is weird.

  1. I can only imagine the painful loss you and your family are going through. Yet you have such joy in reminiscing and looking forward to being with your precious Theodore. Peace, joy and comfort to you all. ๐ŸŒน๐Ÿ’ž

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